Millions of People Suffer from Rare Diseases
According to the German Alliance for Rare Diseases (ACHSE), millions of people worldwide suffer from rare diseases. These can be genetic or acquired, and often lead to severe chronic health problems.
What are rare diseases?
Rare diseases are defined as conditions that affect fewer than one in 2,000 people. There are over 6,000 known rare diseases, and they can affect any organ or system in the body.
Symptoms and diagnosis
The symptoms of rare diseases can vary depending on the condition. However, some common symptoms include:
- Fatigue
- Pain
- Skin problems
- Intellectual disability
- Developmental delays
- Behavioral problems
Diagnosing rare diseases can be difficult, as they are often not well-known by doctors. Many people with rare diseases go years without a diagnosis.
Treatment
There is no cure for most rare diseases, but treatment can help to manage the symptoms. Treatment plans may include:
- Medications
- Surgery
- Physical therapy
- Occupational therapy
- Speech therapy
- Nutritional support
Support
People with rare diseases often need additional support from family, friends, and healthcare professionals. There are also many organizations that provide support to people with rare diseases and their families.
The Million Euro Challenge
The Million Euro Challenge is a German initiative to raise awareness of rare diseases and to support research. The challenge is to raise one million euros to fund research into rare diseases. The campaign was launched in 2017, and has already raised over 600,000 euros.
Conclusion
Rare diseases are a serious problem that affects millions of people worldwide. However, there is hope for people with rare diseases. With early diagnosis and appropriate treatment, many people with rare diseases can live long and fulfilling lives.
Millionen Menschen leiden an seltenen Erkrankungen
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Kurzmeldungen (hib) a new article on 2025-01-24 13:52 titled “Millionen Menschen leiden an seltenen Erkrankungen”. Please write a detailed article on this news item, including any relevant information. Answers should be in English.
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