Drugs for Rare Diseases – Newfoundland and Labrador Agreement
St. John’s, Newfoundland and Labrador – November 15, 2024
The Government of Newfoundland and Labrador has announced a new agreement with the federal government that will provide access to new and innovative drugs for people with rare diseases.
The agreement will provide $30 million over five years to the Newfoundland and Labrador Provincial Drug Program to cover the cost of new drugs for rare diseases. This will allow the province to provide access to a wider range of treatments for patients with rare diseases, including those who have previously been unable to afford them.
“This is a significant investment in the health of Newfoundlanders and Labradorians,” said Health Minister John Haggie. “It will make a real difference in the lives of people who are living with rare diseases.”
Rare diseases are those that affect fewer than one in 2,000 people. There are an estimated 7,000 known rare diseases, and they can range in severity from mild to life-threatening.
“This agreement is a testament to the commitment of the federal and provincial governments to improving the lives of Canadians with rare diseases,” said David Rarey, Executive Director of the Canadian Organization for Rare Disorders (CORD). “We are grateful for this investment, which will make a real difference in the lives of patients and their families.”
The agreement is part of a larger federal government initiative to improve access to drugs for rare diseases. In 2019, the federal government announced a $1 billion investment over 10 years to create a Canadian Drug Agency that will, among other things, negotiate lower prices for rare disease drugs.
“This is a great step forward for people with rare diseases in Newfoundland and Labrador,” said Haggie. “We are committed to working with the federal government to ensure that all Canadians have access to the drugs they need to live healthy and productive lives.”
Drugs for Rare Diseases – Newfoundland and Labrador Agreement
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