Drugs for Rare Diseases – New Brunswick Agreement
Date: 2025-01-15 13:50
Source: Canada All National News
Article:
The Government of New Brunswick and the Canadian Organization for Rare Disorders (CORD) have signed an agreement to improve access to essential drugs for people living with rare diseases in the province.
Under the agreement, the provincial government will provide funding to support a new Rare Disease Drug Program. The program will help cover the costs of eligible prescription drugs for rare diseases that are not currently covered by provincial health plans or private insurance.
The agreement is expected to benefit approximately 1,000 New Brunswickers living with rare diseases. It will provide access to a broader range of drugs, including those that are not yet approved in Canada but have been shown to be effective in treating rare diseases.
Quotes:
“This agreement is a significant step forward in improving the lives of New Brunswickers living with rare diseases,” said Health Minister Dorothy Shephard. “We are committed to ensuring that everyone has access to the essential drugs they need, regardless of their condition.”
“We are grateful to the Government of New Brunswick for recognizing the importance of access to rare disease drugs,” said Alison Fox, President and CEO of CORD. “This agreement will make a real difference in the lives of people living with rare diseases in the province.”
Background:
Rare diseases are conditions that affect a small number of people. There are over 7,000 known rare diseases, and the vast majority of them have no cure.
People living with rare diseases often face challenges accessing the drugs they need. These drugs are often expensive and not always covered by provincial health plans or private insurance.
The Rare Disease Drug Program is designed to address these challenges by providing financial assistance to patients who need to access essential drugs for rare diseases.
Additional Information:
- The Rare Disease Drug Program will be administered by the New Brunswick Health Insurance Commission.
- Eligible patients will be able to apply for coverage through the program’s website or by calling a toll-free number.
- The program will cover the costs of prescription drugs for rare diseases that meet certain criteria, including:
- The drug must be prescribed by a specialist in the treatment of rare diseases.
- The drug must be approved by Health Canada or be recognized as an orphan drug by the United States Food and Drug Administration.
- The drug must not be covered by provincial health plans or private insurance.
- For more information about the Rare Disease Drug Program, please visit the New Brunswick Health Insurance Commission website or call 1-800-561-0919.
Drugs for Rare Diseases – New Brunswick Agreement
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