Public Law 118-142: BOLD Infrastructure for Alzheimer’s Reauthorization Act of 2024
Enactment: December 19, 2024
Purpose:
The BOLD Infrastructure for Alzheimer’s Reauthorization Act of 2024 reauthorizes and expands the Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer’s Act (BOLD Act), which was initially enacted in 2018. The goal of the reauthorized act is to strengthen research, improve care, and support individuals and families affected by Alzheimer’s disease and related dementias (ADRD).
Key Provisions:
Research and Data:
- Increases funding for the National Institute on Aging (NIA) and the National Institute of Neurological Disorders and Stroke (NINDS) to support Alzheimer’s and dementia research.
- Establishes a national data repository for ADRD research, including clinical, genetic, and lifestyle information.
- Develops new technologies and research models to accelerate scientific breakthroughs.
Care and Support:
- Expands access to quality care and support services for individuals with ADRD and their caregivers.
- Provides grants to community organizations and health systems to improve care delivery and reduce disparities.
- Supports innovative programs that promote early detection, diagnosis, and management of ADRD.
Caregiver Support:
- Expands respite care programs to provide caregivers with temporary relief from their responsibilities.
- Offers caregiver training and support services, including counseling, support groups, and online resources.
- Provides financial assistance to caregivers through Medicaid and other programs.
Public Awareness and Education:
- Launches public awareness campaigns to educate the public about ADRD and its impact on individuals and families.
- Develops educational materials and resources for healthcare professionals, caregivers, and individuals at risk.
- Promotes early detection and screening programs to identify individuals with cognitive impairments.
Funding:
The act authorizes $3.5 billion in funding for fiscal years 2025-2029, representing a significant increase from the previous authorization.
Implementation:
- The act establishes a National Alzheimer’s and Dementia Advisory Council to oversee implementation and provide recommendations.
- The NIA and NINDS will administer research grants and coordinate data collection efforts.
- The Centers for Medicare & Medicaid Services (CMS) will implement new payment models and care delivery initiatives.
Impact:
The BOLD Infrastructure for Alzheimer’s Reauthorization Act of 2024 is expected to have a profound impact on the fight against Alzheimer’s disease and related dementias. By investing in research, improving care, supporting caregivers, and educating the public, the act aims to reduce the burden of ADRD and enhance the lives of those affected by it.
Public Law 118 – 142 – BOLD Infrastructure for Alzheimer’s Reauthorization Act of 2024
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